Main Menu
Main Events
Search
CB Workflows
CB Online
None
Navigating School and Daycare with a Gluten Free Diet
Starting with School & Day Care PDF Print E-mail

If you have a child with celiac disease who is just about to enter day care or school, or you have a school-aged child who was just diagnosed with celiac disease, you may be worried about dealing with school.  It can be difficult for a parent who's had control over every aspect of their child's gluten-free lifestyle, to hand them over to a school or day care that may not know a lot about celiac disease.

Here are some areas in which you should be alert when it comes to school and day care:

Read more...
 
Requesting a 504 Plan for a Child with Celiac Disease PDF Print E-mail

Many parents within our Twin Cities ROCK group have been through the 504 Plan process in our local Minnesota schools.  The 504 Plan is assembled to ensure a safe, gluten-free environment for our children with celiac disease. To find out more about the definition of a 504 Plan click here.

How to initiate the 504 Plan for your child in your school district:

 

1. Contact your child’s school and speak to the 504 Plan coordinator – usually the principal.  Inquire about the process in your school district to request a Section 504 evaluation. (If your child has an IEP for Special Ed contact the IEP case manager.) There may be a form to complete, etc. (They will probably tell you they will need a letter from the MD for example.) Then a meeting will be set up. You can request the following be present at the meeting: principal, school nurse, school social worker or counselor, classroom teacher, kitchen manager or head cook, Food Service Director, District Dietitian. At the meeting, you must prove your case – so to speak – the MD letter takes care of that! They may ask you to explain Celiac Disease, a chronic health condition, which may impact their learning at school and requires accommodations.

2. You will need a letter from your child’s MD stating the following:

Read more...
 
Health Care Plan – Celiac Disease/Gluten Intolerance PDF Print E-mail

STUDENT’S NAME: ____________________________________________ DOB______________
My child has Celiac Disease/ Gluten Intolerance? YES_________NO_________

DEFINITION: Celiac Disease (also called “Gluten Intolerance”) is an autoimmune disease caused by the body’s inability to digest gluten. Gluten is the protein found in WHEAT, RYE, BARLEY, SPELT & most OATS. Even small amounts of gluten act like a TOXIN to a person with Celiac Disease, triggering the body to attack itself in the small intestines. There are fingerlike projections called “villi” which line the small intestines. Normally the villi are responsible for absorbing all nutrients. When the villi become exposed to gluten, they become damaged or blunted-off, which leaves the person without the ability to absorb ANY nutrients!!! This is typically diagnosed from blood tests and a biopsy of the small intestines, which shows damage to the villi.

TREATMENT: THE ONLY TREATMENT IS STRICT ADHERENCE TO A GLUTEN-FREE DIET.
HOW DO YOU KNOW WHAT FOODS ARE GLUTEN-FREE?
Some EXAMPLES of foods which need to be substituted for gluten free versions include breads, cereal, breakfast bars, donuts, muffins, pasta/ noodles, cake, cookies, crackers, pretzels, breaded meats, soups & pizza. The main starchy foods that a person with Celiac Disease can eat are made with Rice, Corn, Potatoes, Soy, Quinoa and Tapioca. Other starches that can be used are buckwheat, Bean flours & Amaranth. Most people with Celiac Disease may eat any plain fruits & vegetables, nuts, dairy products and meats that are not prepared with gluten containing ingredients. Many people with Celiac Disease tolerate “Gluten-Free Oats” and these may be served to a child with parental permission. Oats are often contaminated with gluten while harvested, shipped, stored and processed thus making them unsafe for a person with Celiac Disease.) However, oats are often not tolerated on a gluten free diet because the protein in oats is similar to gluten.

PLEASE INDICATE IF CHILD HAS OTHER FOOD INTOLERANCES or FOOD ALLERGIES:
NO__________YES___________
If “YES” please complete “Allergy” form with necessary treatment. (Please cross off any foods listed above which your child cannot eat.)

AVOID CROSS-CONTAMINATION - A CRITICAL PART OF MANAGING CELIAC DISEASE IS TO ASSURE FOODS AND SURFACES REMAIN GLUTEN FREE (GF) DURING FOOD PREPARATION & SERVING & DURING CLASSROOM PROJECTS. PLEASE DEVELOP THESE HABITS:
CLASSROOM:
Avoid ingestion of art supplies - paints, play-dough & licking stamps & envelopes that may contain gluten. Use gluten-free paints and play-dough if possible – include other children at the same table.
Wash tables after art projects or eating in classroom to reduce amount of gluten in classroom. All children need to wash hands after art projects or eating in classroom to reduce gluten in classroom.
Have the person with Celiac Disease wash their hands prior to eating. Younger children may need assistance to remove gluten from hands - nail brush may help.
CAFETERIA:
Wash eating surface and chairs prior to meals to free of gluten particles – between lunch groups in cafeteria. Provide person w/ Celiac disease adequate eating space to avoid cross-contamination from others. Supervise other children who may cross-contaminate the eating area or utensils during the meal. Use fresh serving utensils or fresh gloves to serve gluten-free foods 1st, & then serve the gluten-filled foods. Avoid touching plates with utensils while serving food. Keep separate containers designated as GF for butter/peanut butter/jelly/cream cheese/mayo & frosting. Use a separate cutting board/work surface for food preparation. Have a designated GF toaster too. Use separate pan, water and utensils for cooking – example: GF noodles in fresh water in separate pan.


_______________________________ HAS HAD THE FOLLOWING SYMPTOMS IN THE PAST AS A RESULT OF (OR IN RESPONSE) TO EATING GLUTEN. PLEASE INDICATE KNOWN SYMPTOMS YOUR CHILD HAS HAD AS A RESULT OF EATING TO GLUTEN:
__Diarrhea
__Vomiting
__Constipation
__Tummy pain, abdominal cramps, nausea
__Flatulence (passing gas)
__Loss of appetite
__Weight loss or Failure to gain weight
__Short stature, not growing in height
__Protruding abdomen, muscles wasting away
__Teeth staining or being prone to cavities
__Hair loss, lack of hair growth
__Being lethargic/low energy
__Depression
__Irritability or other Behavior changes
__Seizures
Other related autoimmune diseases:
__Insulin-Dependent Diabetes
__Thyroid Disease
__Arthritis
__Eczema
__Asthma
__Other - SPECIFY:_____________________
ACCIDENTAL EXPOSURE:
Currently there is no medicine or remedy for accidentally ingesting Gluten.
NOTIFY PARENT IMMEDIATELY IF CHILD CONSUMES GLUTEN.
Unlike a food allergy, exposure to gluten for a person with Celiac Disease may or may not have visible or outward symptoms.
The degree of reaction can vary with the amount consumed.
The reaction can vary between being as severe as diarrhea, vomiting & behavior changes or seizures to having outward visible symptoms.
It can take days for the healing to occur in the intestines and symptoms to resolve in the intestines from even a small, accidental gluten exposure.
Please note: Whether or not there are visible symptoms when gluten is ingested, intermittent exposure to gluten can cause inflammation and damage to the intestines - which can lead to malnutrition and osteoporosis and often predispose the person to certain types of cancers. Thus, your cooperation & efforts are important in managing Celiac Disease. Please contact parent if there are any foods in question since gluten is hidden in many foods and medication.
CONTACT INFORMATION:
Mother's Phones: ______________________________________________________________
Father's Phones _______________________________________________________________
Physician __________________________________
Parent signature ______________________________________ date_____________
Physician’s signature (optional) ______________________________date_____________
 

 
What is a 504 Plan? PDF Print E-mail

In order to get accommodations at a school or day care, many parents find doing a "504 Plan" helpful.  At its most basic, it is a document that parents and your child's educators collaborate on and use to guide them as they accommodate your child's special needs.  A medically-required, gluten-free diet fits in with these needs.

Definition of a 504 Plan:

Read more...